More autistics than ever are sharing online.
We are researchers, doctors, lawyers, writers, purveyors of every kind of awesomeness.
Go to your preferred media (books, audio, social media platforms, etc.) and search for #ActuallyAutistic to find autistic-created content – we are everywhere!
Like, subscribe, watch, listen, learn, and absorb!
Some Tips:
From the Therapist Neurodiversity Collective
https://therapistndc.org/education/?fbclid=IwAR2bbw38zu8mK-fOzNTTbsgnNcTM5-OAmbwxOiHgen1XCGTci7DGpftbQU8
Aspie Quiz – rdos.net/eng/Aspie-quiz.php
Resources for Universities from the Neurodiversity Hub
neurodiversityhub.org/resources-for-universities
Intersectionality
“Intersectionality is a metaphor for understanding the ways that multiple forms of inequality or disadvantage sometimes compound themselves and create obstacles that often are not
understood within conventional ways of thinking.”
Kimberlé Crenshaw: What is Intersectionality?
Double Empathy
Milton, D. E. (2012). On the ontological status of autism: The ‘double empathy problem.’
kar.kent.ac.uk/62639/1/Double%20empathy%20problem.pdf
Crompton C.J., Sharp M., Axbey H., Fletcher-Watson S., Flynn E.G. and Ropar D. (2020). Neurotype-Matching, but Not Being Autistic, Influences Self and Observer Ratings of Interpersonal Rapport.
researchgate.net/publication/345701942_Neurotype-Matching_but_Not_Being_Autistic_Influences_Self_and_Observer_Ratings_of_Interpersonal_Rapport
The Eight Spectrum Approach
https://onlinelibrary.wiley.com/doi/pdf/10.1111/jpc.14176
Silberman, Steve (2015). Neurotribes, The Legacy of Autism and How to Think Smarter About People Who Think Differently. Crows Nest Australia: Allen & Unwin. ISBN 978 1 76011 362 9
Higashida, Naoki, 1992- author. (2013). The reason I jump : the inner voice of a thirteen-year-old boy with autism. Toronto :Knopf Canada.
Singer J, (1998) Odd People In: The Birth of Community Amongst People on the Autism Spectrum: A personal exploration of a New Social Movement based on Neurological Diversity. An Honours Thesis presented to the Faculty of Humanities and Social Science, the University of Technology, Sydney, 1998.
Te Reo Hāpai: The Language of Enrichment. Developed by interpreter and expert Keri Opai in 2017 for the Aotearoa Health and Disability sector, takiwātanga is part of an entire glossary of Te Reo Māori. For the full glossary, go to tereohapai.nz
Autistic Life Span Studies
edition.cnn.com/2017/03/21/health/autism-injury-deaths-study/index.htm
www.abc.net.au/radio/programs/am/autistic-people-are-dying-twice-the-rate/10849046
Underemployment in Autistics
abs.gov.au/ausstats/abs@.nsf/Latestproducts/4428.0Main%20Features52012
bmcpsychiatry.biomedcentral.com/articles/10.1186/s12888-018-1645-7
ncbi.nlm.nih.gov/pmc/articles/PMC3362908/
journals.sagepub.com/doi/full/10.1177/2158244019862725
journals.sagepub.com/doi/full/10.1177/2396941518804407
APAC 2019
altogetherautism.org.nz/blueprint-for-autistic-world-domination/
Autistic blogs
https://anautismobserver.wordpress.com/
https://anautismobserver.wordpress.com/even-more-autistic-blogs/
https://anautismobserver.wordpress.com/notes/resources/
Directory of autistic-led business from the Fierce Autie
ABA research – this epic resource was compiled by Max Shinske
https://docs.google.com/document/d/1mhj_7filLX9N7qsSAfG33Mu-PmUwCR5rpfCpOQTemaY/mobilebasic?fbclid=IwAR3gW43g6-KjpVWG94enAMp-pSb7nPTRezw9INrIwum2yOJLcjZcfl9QkkM
More on PBS (Positive Behaviour Support)
https://amase.org.uk/pbs/?fbclid=IwAR3h7H3ztnprplValjvZyXw8ddRCDAVttph6uqTPXfb8ACWa_HEX-zPREXo
ABA Advice for Parents
Written by John Greally, Remutaka, Aotearoa. Posted to the Autism Inclusivity online group in December 2023. This is an Autistic-led group for parents and caregivers of Autistic children to ask questions of Autistic adults. https://www.facebook.com/groups/autisminclusivity
https://autisticadvocacy.org/wp-content/uploads/2017/04/AutismSpeaksFlyer2020.pdf
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Instead of the above try these:
From the Therapist Neurodiversity Collective
https://therapistndc.org/education/?fbclid=IwAR2bbw38zu8mK-fOzNTTbsgnNcTM5-OAmbwxOiHgen1XCGTci7DGpftbQU8
Autistic Self Advocacy Network (ASAN)
autisticadvocacy.org
Autistic Women & Nonbinary Network (AWN)
awnnetwork.org
Self Advocates Becoming Empowered (SABE)
sabeusa.org
More on PBS (Positive Behaviour Support) Please read before using PBS
https://amase.org.uk/pbs/?fbclid=IwAR3h7H3ztnprplValjvZyXw8ddRCDAVttph6uqTPXfb8ACWa_HEX-zPREXo
Possible sources of aggression: https://wearelikeyourchild.blogspot.com/2014/05/a-checklist-for-identifying-sources-of.html?m=1
Jolene’s Articles
• My Toastmasters journey: https://www.toastmasters.org/Find-a-Club/28675344-neurodiverse-leadership-toastmasters
• Neurodivergent communication: https://www.toastmasters.org/magazine/magazine-issues/2023/may/my-autistic-identity
The Neurodiversity Toastmasters Club
“Even though we love to scare ourselves,” says autistic Toastmaster Lauren Stull, “fear of the unknown is one of the most natural fears.” Lauren, a member of Spectrum Speakers Gavel Club in Irvine, California, is improving her speaking skills along with her confidence, “The world is just easier to engage in when things make sense.”
That certainly includes many Toastmasters. For example, Thomas Iland, DTM, is autistic, as well as a Toastmasters International Accredited Speaker, a TEDx speaker, and a member of
Neurodiverse Leadership Toastmasters, a global online club chartered in New York City. In 2014, he was at a crossroads, deciding whether or not to leave his accounting career and become a full-time consultant. Joining Toastmasters not only made his career decision easy, but also became key to his personal growth. “I really enjoy the structure of meetings and the community created by the Toastmasters experience. I’ve found it to be a very enlightening and uplifting place to get me through the thick and thin times in my life, particularly during the COVID-19 pandemic” he says.
As President and Sponsor at the Neurodiverse Leadership Toastmasters Club, Jenny Liu DTM is proud to be co-creating a neuroinclusive environment. “We’re using human-centered design and parliamentary procedure with a mix of neurotypical and neurodivergent professionals to grow more effective leaders who enable the neurominority voice to be heard using different, but equally valid, social languages. We celebrate what we can achieve collectively when we complement each other’s talents.”
• Neurodiversity Toastmasters Club – join from anywhere in the world, meet and learn from other neurodivergents https://neurodiverse.toastmastersclubs.org/
Important:
Know that you are already awesome. Truly. You’re good. As is. You don’t have to look a certain way, communicate a certain way, or be a certain way.
I’ve been a Toastmaster longer than I’ve been almost anything. My club was the place I grew up, made life-long connections, and learned way more than the communication training I signed up for. And even though I was terrified to go Every. Single. Week. It was a safe, happy space, and it felt good (especially on the way home when it was done :)).
I’m so grateful I am able to speak. But I mostly use my communication training to let people know that autistic people don’t need communication training (see the Double Empathy Problem). Because you know what? I wish I didn’t spend so much energy learning something because I thought I was broken. I pressured myself into learning to speak because I believed I was less-than if I couldn’t. I believed the school reports, the performance reviews, the off-hand comments, “You should speak up more” “Jolene is bright but needs to participate in discussions” “Jolene needs to contribute verbally” “You’re too quiet” without them. I believed I needed to be able to speak to make a difference. I wish someone had told me: Take on challenges because they make you feel good or strong. Study subjects you are passionate about. Because it is fun. Not to be worthy, productive, or loved.
There are actually very few “have tos” in life. Choosing to upskill, grow, learn, or change because you want to is THE BEST! Knowing that you can take on challenges and that there are tools and people to support you is soooo good, but it’s also your call. And if you want to? Try new things, stretch your comfort zone, learn public speaking. And know that you can always change your mind.
Amplifying Autistic Voices
I’m so excited to be supporting a California State University research study into the impact of a Toastmasters program on autistic youth. Funded by The Organization for Autism Research, the researchers are working with neurodivergent members (and even entire clubs with a neurodivergent focus) in the two-year study. Their project, called Amplifying Autistic Voices, was inspired by my TEDx talk. It’s expected to boost existing anecdotal evidence with science-based empirical evidence, showcasing the benefits of a Toastmasters environment for neurodivergent brains.
• Amplifying Autistic Voices. California State University, Fullerton 2021.
Principal Investigator(s): Yasamin Bolourian, Ph.D. and Sasha Zeedyk, Ph.D.
Learn more here https://researchautism.org/evaluating-the-value-of-a-toastmasters-program/
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